My prayers go out to you. We wheeled together back at JK fest the year before last.
The year before my wife was suddenly diagnosed with Leukemia and we have been fighting through it since. The one thing I have learned, is never take top level numbers or any prognosis you are given at face value.
I remember you were somewhere outside of Buffalo so I also hope that you have the ability to go to a top level center.
The most important thing I also learned is when you life is on the line to seek out the top place in the world for the specific fight you have. When it was discovered by accident in her by our GP, we were reffered to a local ONC. They had her set to start all sorts of treatment and a surgery for a medi port asap. I started researching like mad and found the realistically the top doctor in the world for her type of Leukemia at MD Anderson in Houston Texas.
They accepted us as a patent where an entire battery of different genetic tests were done. Really light years ahead of what the local ONC had set for her.
She finished treatment this fall, did not lose any hair, did not require a medi-port and her last bone marrow showed zero traces of Leukemia. It's still a long road back for her in recovery but at the end of the day it paid endless dividends in her life to go to where the world center for her type was.
Again, I don't know about who your ONC and everything you are going through. However, you might want to take a look at MD Anderson in Houston. Besides their Leukemia Wing, it is one of the largest focused Cancer places in the country.
They have advances and things that are years ahead of what might be availibile at a local level.
I can not say enough about the facility and personnel there, it has been a life saver and worth the travel.
They also are the only ones besides the Univeristy of Pittsburgh using the Kanzius machine.